Susan Sontag believed that there is a kingdom of the well and a kingdom of the sick. I find this to be very true, and now as I reside again in the latter rather than the former, people come to visit me far less often in my not-so-new home. Even those whom  I love and trust and who love me seem to not be able to entirely cross the bridge of my illness. They seem to be able to tolerate a bit of my strange land, or they just avoid it, pretend it doesn’t exist. This makes the border difficult to cross both ways.

      I don’t know when it’s necessary for me to emigrate, and sometimes I’m too tired to. I desperately don’t want it to be this way, but I’m finding that the reality of my new citizenship is too hard to ignore. Maybe I’m too tired to always make the trip. Maybe this is where I have been created to work.

      And maybe I like this tribe better; maybe I find more humanity, more beauty, more grace with the other broken, the others with chaos running through their veins. They seem less like a slippery mirage than the other tribe and much more like good, dark dirt, soft and tangible and visceral to the touch, rich in all things good, easily able to grow something else beautiful from their being turned inside out and outside in again.

The Very First Blog Post

The Very First Blog Post

       The very first blog post… it’s so intimidating, right? Because I have to tell you what I want you to know about me, and what I’m going to write about, and why you should come back to read it.  And that sounds really scary… and difficult. It’s hard to describe ourselves, or to neatly summarize our passions, or seemingly put ourselves into a box.

      What I can tell you is who I am to my core, without any regard for what is trendy or flattering. I’m a passionate, bubbly, sometimes loud Italian girl from Des Moines, Iowa, which will always be home to me. I’m the youngest of my generation in a large, crazy, beautiful family that I daily miss so much that it physically hurts. I’m a grateful Christian who falls short of deserving or appreciating the kindness and grace with which Jesus blesses me over and over.

      I’m a girl who’s madly in love with my boyfriend and our kitties, and can’t get enough time with them all. I’m a libertarian, who believes in the rights of life, liberty and property for all. I’m a political junkie, born and raised in the Iowa caucus chaos, who will always miss campaign life and never be able to give up her passion for defending liberty and human rights. I’m a fearless, with-all-my-heart pro-life activist, no matter the cost or danger. I’m a feminist, who believes that women should be equal to men socially, judicially and economically, and that we still have a ways to go. I’m a Virginia transplant, trying to chase down the DC dreams I’ve always held in my heart.

      I’m a warrior battling a debilitating disease every day, endometriosis, along with adenomyosis and interstitial cystitis. I’m an advocate, protector and friend to my fellow endo sisters  who are suffering and struggling in silence amidst the pain and lack of proper treatment. I’m a chronically ill person who doesn’t have the luxury of being a normal 24 year old woman; I have to fight for my health in more tiny ways every day than you could imagine.

I’m one tough cookie who never gives up or throws the towel in. I wear unbearable pain like a string of pearls and pair it with a lipstick smile. I’m a risk taker, a cross-country move maker. I’m that girl with crazy curly hair, fire in her heart and steel in her bones, a tornado with pretty eyes and a heartbeat. I’m easily bruised but never broken. I am imperfect, always struggling to improve despite myself, beginning again every day to create the newest most beautiful version of myself. I am loved, and I love. I make mistakes and I let people down, including myself. I am constantly aspiring to accept the love and joy God always has in store for His children. I am a hurricane of emotions, hopes, dreams, fears, and passions. I strive to choose joy everyday, despite any and all circumstances..

If you want to read honest, vulnerable thoughts, you’ve come to the right place. If you strive to love God with all your heart, so do I. If you know what it feels like to love people like crazy, you have something in common with me. If you care deeply about human rights or politics, welcome. If you relate to chronic illness or would like to learn more, please stick around. If you love cute cat pictures, you’re in luck!

      So in short, I hope that through who I am and what I’m passionate about, you will see where my heart is, and that some part of it will speak to who you are and what you love, and that you will choose to become part of my whirlwind, sit in the passenger seat as I travel through life! I’m excited to see where it takes us.

                                                                                                                     -Katie Joy