Tag: family

33 Days – The Countdown Begins!

33 Days – The Countdown Begins!

This post has been so intimidating to write, since so much has happened in the past couple months and you need to be caught up, dear friends and family who have faithfully and lovingly followed my journey. Sometimes I feel selfish for thinking that my story matters, or that it’s worth sharing, but I know that if my struggles, my discoveries, even just my telling of this story can help one person out there with chronic illness feel less alone and a tiny bit more empowered, or if my story can help a woman become diagnosed, it has all been worth it. I must be faithful in the sharing, and God will bring the increase.

As you might know, I’ve had two previous surgeries for endometriosis. One gave me 2 months of relief, the other 8 months. I relapsed in September 2016 and joined forces with the amazing Dr. John Dulemba in Denton, Texas, in January of 2017. We decided to proceed with two excision surgeries to remove the endometriosis and do some other things to decrease my pain. This has been stalled by job and insurance loss, finances (the surgeries have a very high out-of-pocket cost), medical testing, and logistics. It has been heartbreaking, and grueling, as my physical state has continued to decline.

This summer has been filled with turning 25, entering into pain management, heart monitors, doctor’s appointments, dental work, financial finagling, working really hard at my new job which I love, savoring the little moments with my boyfriend and our cats, and working towards the ultimate goal of the two surgeries.

It has been a LONG road, but I am so thrilled to announce that I will be having surgery on October 27th and November 1st! We are currently 33 days away from surgery, and I can’t explain how wonderful, surreal, and terrifying it is to know how close we are to what I believe will be an excruciating but beautiful turning point in my life, if all goes as planned. I’m finishing up a series of tests and appointments leading up to the surgeries, and all the logistics and packing that comes with a 10 day stay in another state!

I would love your prayers, well wishes, good vibes, hugs, and questions (please ask me ANYTHING you want about endometriosis or chronic illness), and I hope you stop back tomorrow; I will be blogging daily throughout this process of preparing for surgery, enduring the surgeries, recovering, and hopefully entering into remission! Jesus has been so loving to me throughout my journey, and I know He will do incredible things in the next couple months that I want to share with you.

I will open my soul and share the beautiful, the painful, the boring, the unexpected, the exciting, and the sacred. This is my promise to you, my friends, my family, my supporters, my endo sisters; I hope you will consider walking this path alongside me.

Love to all of you,

Katie Joy

 

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The Very First Blog Post

The Very First Blog Post

       The very first blog post… it’s so intimidating, right? Because I have to tell you what I want you to know about me, and what I’m going to write about, and why you should come back to read it.  And that sounds really scary… and difficult. It’s hard to describe ourselves, or to neatly summarize our passions, or seemingly put ourselves into a box.

      What I can tell you is who I am to my core, without any regard for what is trendy or flattering. I’m a passionate, bubbly, sometimes loud Italian girl from Des Moines, Iowa, which will always be home to me. I’m the youngest of my generation in a large, crazy, beautiful family that I daily miss so much that it physically hurts. I’m a grateful Christian who falls short of deserving or appreciating the kindness and grace with which Jesus blesses me over and over.

      I’m a girl who’s madly in love with my boyfriend and our kitties, and can’t get enough time with them all. I’m a libertarian, who believes in the rights of life, liberty and property for all. I’m a political junkie, born and raised in the Iowa caucus chaos, who will always miss campaign life and never be able to give up her passion for defending liberty and human rights. I’m a fearless, with-all-my-heart pro-life activist, no matter the cost or danger. I’m a feminist, who believes that women should be equal to men socially, judicially and economically, and that we still have a ways to go. I’m a Virginia transplant, trying to chase down the DC dreams I’ve always held in my heart.

      I’m a warrior battling a debilitating disease every day, endometriosis, along with adenomyosis and interstitial cystitis. I’m an advocate, protector and friend to my fellow endo sisters  who are suffering and struggling in silence amidst the pain and lack of proper treatment. I’m a chronically ill person who doesn’t have the luxury of being a normal 24 year old woman; I have to fight for my health in more tiny ways every day than you could imagine.

I’m one tough cookie who never gives up or throws the towel in. I wear unbearable pain like a string of pearls and pair it with a lipstick smile. I’m a risk taker, a cross-country move maker. I’m that girl with crazy curly hair, fire in her heart and steel in her bones, a tornado with pretty eyes and a heartbeat. I’m easily bruised but never broken. I am imperfect, always struggling to improve despite myself, beginning again every day to create the newest most beautiful version of myself. I am loved, and I love. I make mistakes and I let people down, including myself. I am constantly aspiring to accept the love and joy God always has in store for His children. I am a hurricane of emotions, hopes, dreams, fears, and passions. I strive to choose joy everyday, despite any and all circumstances..

If you want to read honest, vulnerable thoughts, you’ve come to the right place. If you strive to love God with all your heart, so do I. If you know what it feels like to love people like crazy, you have something in common with me. If you care deeply about human rights or politics, welcome. If you relate to chronic illness or would like to learn more, please stick around. If you love cute cat pictures, you’re in luck!

      So in short, I hope that through who I am and what I’m passionate about, you will see where my heart is, and that some part of it will speak to who you are and what you love, and that you will choose to become part of my whirlwind, sit in the passenger seat as I travel through life! I’m excited to see where it takes us.

                                                                                                                     -Katie Joy