Tag: friends

26 Days

26 Days

Apologies, friends and families, for my absence! I promised I would post every day, but the past couple days has been unexpectedly difficult. On Wednesday, I had a cortisone injection in my right hip at my pain management clinic. My right hip has always been a painful area when I have active endometriosis, so I ‘m hopeful that it will decrease the pain until the upcoming surgeries!

I knew that it wouldn’t a great experience for me since I hate needles so much (and it involved 9 needle pricks within about 5 minutes), but I didn’t expect my leg to be so sore for several days. Wednesday and Thursday night, I couldn’t sleep very well due to tossing and turning because my hip and knee were so painful and I couldn’t ever get comfortable. Friday and Saturday, my calf was completely locked up due to limping and overcompensating to protect my hip. I’ve wanted to cut my leg off since the injection!

But the pain has decreased each day, and I’m very hopeful that, in time, it will help with the pain and inflammation caused by endo in that hip until the surgeries.

I also got two blessings the past couple days; mail from two of my favorite sisters! The first sent me a card and what sounds like a great book, which was really thoughtful since it’s a book she read, loved, and suggested to me. The second package, which came from a dear chronic illness sister, contained an incredibly sweet card, a gorgeous watercolor flower and handmade bookmarks composed of small drawings and quotes that have been important and poignant to her through her years of health issues, wrapped together with a little light green crocheted loop.

Both of these ladies cheered up my day immensely (and they also know me very well)! I am so grateful for their friendship and love. I ADORE getting mail, I will always devour books specifically suggested to me, I am always in need of a good bookmark, and I absolutely love something as personal as sharing quotes that were their strength in hard times. Nothing couldn’t be more precious and meaningful to me!

Thank you to both of these women; you know who you are, and I love you very much! God dispenses His love to us in several ways, and the two of you are part of the way He shares it with me ❤

It’s 11:11, and we are 49 minutes until it’s Day 25! Time for me to prepare for the coming week, which when it starts, will feel like a freight train bearing down until it has ended. I wish you a wonderful Monday, and all of God’s blessings!

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33 Days – The Countdown Begins!

33 Days – The Countdown Begins!

This post has been so intimidating to write, since so much has happened in the past couple months and you need to be caught up, dear friends and family who have faithfully and lovingly followed my journey. Sometimes I feel selfish for thinking that my story matters, or that it’s worth sharing, but I know that if my struggles, my discoveries, even just my telling of this story can help one person out there with chronic illness feel less alone and a tiny bit more empowered, or if my story can help a woman become diagnosed, it has all been worth it. I must be faithful in the sharing, and God will bring the increase.

As you might know, I’ve had two previous surgeries for endometriosis. One gave me 2 months of relief, the other 8 months. I relapsed in September 2016 and joined forces with the amazing Dr. John Dulemba in Denton, Texas, in January of 2017. We decided to proceed with two excision surgeries to remove the endometriosis and do some other things to decrease my pain. This has been stalled by job and insurance loss, finances (the surgeries have a very high out-of-pocket cost), medical testing, and logistics. It has been heartbreaking, and grueling, as my physical state has continued to decline.

This summer has been filled with turning 25, entering into pain management, heart monitors, doctor’s appointments, dental work, financial finagling, working really hard at my new job which I love, savoring the little moments with my boyfriend and our cats, and working towards the ultimate goal of the two surgeries.

It has been a LONG road, but I am so thrilled to announce that I will be having surgery on October 27th and November 1st! We are currently 33 days away from surgery, and I can’t explain how wonderful, surreal, and terrifying it is to know how close we are to what I believe will be an excruciating but beautiful turning point in my life, if all goes as planned. I’m finishing up a series of tests and appointments leading up to the surgeries, and all the logistics and packing that comes with a 10 day stay in another state!

I would love your prayers, well wishes, good vibes, hugs, and questions (please ask me ANYTHING you want about endometriosis or chronic illness), and I hope you stop back tomorrow; I will be blogging daily throughout this process of preparing for surgery, enduring the surgeries, recovering, and hopefully entering into remission! Jesus has been so loving to me throughout my journey, and I know He will do incredible things in the next couple months that I want to share with you.

I will open my soul and share the beautiful, the painful, the boring, the unexpected, the exciting, and the sacred. This is my promise to you, my friends, my family, my supporters, my endo sisters; I hope you will consider walking this path alongside me.

Love to all of you,

Katie Joy